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The Troubled Dream of Genetic Medicine : Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease

	Author(s):	Keith Wailoo, Stephen Pemberton
	Collection:
	Publisher:	The Johns Hopkins University Press
	Year:	2006
	Language:	English
	Pages:	260 pages
	Size:	3.15 MB
	Extension:	PDF

[tab] [content title="Description"]Why do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a ''Caucasian'' disease; and sickle cell disease, widely associated with African Americans. In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how these diseases -- fraught with ethnic and racial meanings for many Americans -- became objects of biological fascination and crucibles of social debate. Peering behind the headlines of breakthrough treatments and coming cures, they tell a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs. With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors provide a glimpse into a diverse America where racial ideologies, cultural politics, and conflicting beliefs about the power of genetics shape disparate health care expectations and experiences. [/content] [content title="Content"] [/content] [content title="About the author"]Keith Wailoo (keithwailoo.com(link is external)) is Henry Putnam University Professor of History and Public Affairs. He is jointly appointed in the Department of History and in the Princeton School of Public and International Affairs. He is former Vice Dean of the School of Public and International Affairs, former Chair of History, and current President of the American Association for the History of Medicine (2020-2022). His research straddles history and health policy, touching on drugs and drug policy, on the politics of race and health, on the interplay of identity, ethnicity, gender, and medicine, and on controversies in genetics and society. [/content] [/tab]

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